SocialGenomics network ecosystem
SocialGenomics is building a patient network seeking guidance. We are actively looking to collaborate with patient foundations, academia, hospitals, pharma and biotech to accelerate access to life-saving information. We aim to offer comprehensive guidance for patients to navigate through the healthcare system and find personalised treatments. Our goal is to connect patients searching for answers with professionals able to provide those. Additionally, experts working on answers and searching for ways to work more closely together with patients are matched.
- Improve access to information about how to get receive personalised treatments
- Improve access to diagnostics that help explore if there are more effective treatment options available
- Match patients to (data) research or projects focusing on their case and their pathway
Growing AI patient network
Cross-dimensional knowledge sharing
Patients are tremendously grateful when they receive trusted information about treatments, new technologies and innovations. By joining our network as a partner, we enable secure, patient-centric, cross-dimensional knowledge sharing. Helping patients by supporting you in better understanding patients needs and how you can better reach them.
Informed Consent
Patients own their health data. We fully inform patients about their rights as a patient. The network enables matching to information or studies that are relevant to them. The network digitizes the informed consent procedures in order to save time and to benefit the patient.
Data-science analytics
Together with patients, we are analyzing patterns between patients to better understand the journey of patients with similar tumours and rare conditions, their experience with different treatments, side effects and emotions over time. Generating real-world experiences from patients that can be used to improve patients’ lives and treatments in the future.
TODAY’S ECOSYSTEM
Find a cure for patient Harry
The SocialGenomics network is building a first-of-its-kind digital network around patient Harry and other patients like Harry. Harry is diagnosed with oesophagus cancer, stage 4, metastasized, HER2 protein and currently receives an experimental mixture of chemo and immunotherapy. Currently, his digital profile is being created. We are working together with partners interested in his case, to accelerate data insights and find a cure.
SocialGenomics is searching for partners who want to sponsor the genomic sequencing of patients like Harry. Study participants receive their raw genetic data and a report. After informed consent, the study sponsor receives access to genomic data in order to use it for data-science research and link it to everything that is known about Harry’s case and other cases.
We help you find patients with specific profiles
Many patients do not have access to available personalised treatments, nor information about its existence and how to get access. Only few who have the monetary resources, required education, cognitive capacity and network can find their way.
Our goal is to close this bridge by democratizing access to life-saving information for everyone. We also believe that there is so tremendous room for improvement if we were able to closely monitor patient experiences, their journeys, and their needs and identify collective patterns.
We’re bringing patients closer to science – or in other words – to enable patient-driven science. We work with patients searching for answers and invite you to join our ecosystem.
ASK OUR PATIENTS
Collective intelligence
Many minds know more than one. Imagine you could collaborate with patient groups and subgroups with specific characteristics from all corners of the world and receive real-world and longitudinal feedback from them. SocialGenomics is offering you a secure, machine learning driven platform using the power of a social network to match patients and experts, bring information together and learn collectively.
Every patient that joins helps other patients. All patients together help all new patients that will follow next. And through bringing together patients today, patients are helping each other in the future. Due to the silos in the current system, it was almost impossible to realize this for individual patients. But we make it possible.
Join the network to help more patients
We believe that accelerating the journey to find new personalised treatments and cures requires us, patients, healthcare stakeholders and industry to work together. Collaborate with our patient network to learn about true patient centricity and build a patient ecosystem around patients digitally.
One team, one mission
Being part of our network ecosystem provides you tools to learn about more patient-centric approaches, how to improve access to personalised treatments for those searching and helps you to optimise your life-cycle processes. Through collaboration, you gain unique patient insights.
- Launch a (data-science) project for patients with esophagus cancer or another specific tumor group together
- Start a digital health project for patients to improve access to information about sub groups of cancer, what patients can do and improve direction to usefull treatment information
- Launch an awareness campaign with us about personalised healthcare to educate patients and help them feel in control again
- Start a multi-year research collaboration to accelerate finding a cure for a specific sub-group of patients
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Become our partner
Help patients making life-saving information and treatments available, accessible and affordable for every person on earth, and save money doing it.
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